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Aortic Hope's Collaboration with Rare Patient Voice

carinandersen

Updated: Nov 10, 2023

We are excited to announce our continued collaboration with Rare Patient Voice.

Rare Patient Voice, LLC provides patients and caregivers with rare diseases (or any for that matter) an opportunity to voice their opinions through surveys and interviews to improve medical products and services.


Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders.

Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.

While they started by focusing on rare diseases, they now welcome patients and caregivers with all medical conditions.

They have learned that it is important to patients and caregivers to be able to give their opinion. It is also important to get your rewards in a timely manner.

They are proud to have rewarded patients with over $3 million since their founding!


Would you like your voice to be heard? Complete our easy form to get started!!


REMEMBER add any and all medical issues you may experience or provide care to. Your information is protected and you may wish to remain anonymous. Their clients are Market Researchers whose clients are usually Pharma or Health-related clients of some fashion. Data in their database is only used by Rare Patient Voice. A Market Research client will send them a request for patients and/or family caregivers with parameters such as condition, meds, age range, etc.

Take a look at the video and CLICK to join today...earn up to $150 for participating and Aortic Hope earns $10 for every new registration.

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Rock from the Heart's mission is to proactively educate people about aortic and heart valve disease, bridge the gap between impacted families and the support they need, connect those diagnosed with vital resources, and inspire all through the healing power of music.  

Doherty, Cella, Keane LLP is a national law firm solely focused on Social Security disability benefits. With over 40 years of expertise, their skilled attorneys guide clients through every stage of the process, from initial applications to appeals. The firm is highly experienced in representing individuals with aortic dissections and related conditions, ensuring specialized, compassionate advocacy. Operating on a contingency basis, they provide peace of mind with no fees unless benefits are awarded. Trust DCK Law for reliable and dedicated representation in this critical area.

Heart Valve Voice US, a patient advocacy, nonprofit organization, provides patients with a united voice to improve health for people living with heart valve disease by advocating for early detection, meaningful support, and timely access to appropriate treatment for all people affected by heart valve disease. Heart Valve Voice works with people living with heart valve disease, clinicians and other experts, and other patient service and advocacy organizations to identify barriers to improving health for people living with valve disease and advocates for change to enhance health.

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Aortic Hope P.O. Box 17 Abingdon, MD 21009

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