top of page
Search

Aortic Dissection: The Patient Guide

carinandersen

Order your copy today.

​1 Copy/household | Aortic Dissection: The Patient Guide

https://bit.ly/AHAD-PatientGuide

Bulk Order (Medical Professionals) Aortic Dissection: The Patient Guide

https://bit.ly/AHAD-Bulk-PatientGuide

 
Aortic Dissection: The Patient Guide

Aortic Hope, with the support of Think Aorta US, has launched Aortic Dissection: The Patient Guide in September 2023, Aortic Disease Awareness Month.


Aortic Hope was established in 2016 with the goal to create an organization that could meet the needs of the aortic community wherever they are in the recovery and management of aortic disease. We have done so through a variety of means such as providing educational and interactive podcasts, showcasing survivor and caregiver stories as well as offering a safe space to go for support. One question that is often brought to our attention is what life may look like post-dissection. This is in part due to the misinformation being presented on the internet as well as the lack of information provided post dissection. In addition, there is a misconception that monitoring is no longer necessary after surgery. These troubling questions are answered through Aortic Dissection: The Patient Guide.


Aortic Hope’s project lead Jeni Shaffer, Director of Administrative Services and Board Member, is also a multiple aortic dissection survivor from 2020, and says:

Aortic Dissection: The Patient Guide is a labor of love that we all wish we had received after our aortic dissection. Written by patients, for patients, the depth and breadth of the book is comprehensive and details everything from basic education about what happened to you through recovery and life after dissection.
After my dissection, I had no idea what had happened, why, and how I was going to navigate recovery. Every fellow survivor echoes this problem, so when I found out I could take this project on, I was honored.
Aortic Dissection: The Patient Guide was originally written by our friends from Aortic Dissection Awareness UK & Ireland, and they graciously allowed Aortic Hope to bring it to the US. For more than ten months, a team of doctors, clinicians, and patients in the US revised and translated the content of the guide to become a US patient and caregiver resource. We are proud to say that this guide has been endorsed by The Society of Thoracic Surgeons (STS) and the Society for Vascular Surgery (SVS).
Aortic Hope Is a nonprofit organization whose board members are not financially compensated. To bring this guide to life, we relied on funding from generous organizations like Run for Aortic Health, Terumo and Edwards Lifesciences to be able to provide this guide at no cost to doctors, clinicians, and hospitals for their aortic dissection patients. Through charitable acts like these, our goal is to eventually provide a guide in some form to every aortic dissection patient in the US.” Patients and their caregivers may presently download a PDF of the guide from our website.”

Collectively, the board of Aortic Hope writes:


“Presenting Aortic Dissection: The Patient Guide (US edition) to the community, is a defining moment for all of us. We are confident in saying that if we had a copy of this guide to read and refer to after our aortic dissections, not only would recovery have been easier, but our outlook on our future would have been brighter sooner. Even now, for some of us over 10 years since dissecting, reading this book has enlightened and educated us.”

220 views0 comments

Recent Posts

See All

Comments


Our Sponsors
RFTH background removed white outline PNG.png

Rock from the Heart's mission is to proactively educate people about aortic and heart valve disease, bridge the gap between impacted families and the support they need, connect those diagnosed with vital resources, and inspire all through the healing power of music.  

Doherty, Cella, Keane LLP is a national law firm solely focused on Social Security disability benefits. With over 40 years of expertise, their skilled attorneys guide clients through every stage of the process, from initial applications to appeals. The firm is highly experienced in representing individuals with aortic dissections and related conditions, ensuring specialized, compassionate advocacy. Operating on a contingency basis, they provide peace of mind with no fees unless benefits are awarded. Trust DCK Law for reliable and dedicated representation in this critical area.

Heart Valve Voice US, a patient advocacy, nonprofit organization, provides patients with a united voice to improve health for people living with heart valve disease by advocating for early detection, meaningful support, and timely access to appropriate treatment for all people affected by heart valve disease. Heart Valve Voice works with people living with heart valve disease, clinicians and other experts, and other patient service and advocacy organizations to identify barriers to improving health for people living with valve disease and advocates for change to enhance health.

Nectero Medical Logo v2 (1).jpg

Nectero Medical is a clinical-stage biotech company pioneering novel therapies with a potential to treat aneurysmal disease and improve patients’ lives.

Hope Ambassador

 

Would you like to spread hope, create awareness, and provide support with us?

Survivor Series

Share your amazing story of survival, or as a caregiver, with the community. 

Patient Awareness Posters

If you would like to have these in your doctor’s office, please click the Sign-Up button.

  • Facebook
  • YouTube
  • Instagram
  • X
  • LinkedIn

 

Aortic Hope P.O. Box 17 Abingdon, MD 21009

bottom of page